Tales from the Bed: On Living, Dying, and Having It All - Hardcover

Jenifer Estess was the CEO and founder of Project A.L.S. She lived in New York City, where she spent her best times with Jake, Willis, Jane, James, Kate, and the rest of her family.

By the time 40-year-old Jenifer Estess died of ALS (Lou Gehrig's disease) last December, she and her sisters had founded an organization-Project A.L.S.-to find a cure for this fatal neuromuscular disease. This fast-paced, witty book, written with one of her sisters, is both a memoir of Jenifer's six-year struggle with the disease and a chronicle of Project A.L.S.'s birth and work. Unfortunately, the beauty of the writing and the story is compromised by a too-casual structure; even simple chapter titles could have remedied the book's scattered feeling. This haze appears elsewhere, too: for instance, after deciding to found Project A.L.S, the sisters recruited theater colleagues, including Ben Stiller, to help, but they don't explain how Jenifer had made those contacts in the first place (the necessary details of her profession as a theater producer aren't revealed until the book's second half). Flashbacks to Jenifer's romantic history and to her mother's love life are well written and funny, but sometimes feel inappropriate to the story. The book does engage, however, when it details Jenifer's relationship with her supportive friend Reed, who liberates-and loves-the wheelchair-bound Jenifer. But later, as Jenifer describes her inability to speak or write, readers may wonder how she managed to create this part of the book. The final chapter, though, is beautiful: in a clever, poignant twist, Jenifer continues to narrate her death and its aftermath, bringing the sisters' love and closeness full circle as readers wonder where Jenifer ends and Valerie begins.
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